Dear Legislator:
I am humbly requesting that you consider funding for epilepsy patients to have access to quality, affordable, and patient-centered care through the Affordable Care Act (ACA) Marketplace and Medicaid expansion. In addition, to provide funds for protecting disability rights, educate the community, and end stigma and discrimination through epilepsy awareness. As the ACA points out on strengthening and enforcing patient protection. I find important that the management of epilepsy is advocated for will enable patients to access quality healthcare that is cost-effective and able to meet the needs of chronic conditions and disabilities.
The clinical management of epilepsy involves the control of seizures, ensuring zero side effects, and maintain quality of life. Antiepileptic drugs used for prescribed by health care specialists provide a short relief and not an ultimate cure. This means that patients will consistently rely on drugs and healthcare services to manage this condition. It comes alongside economic burdens and other adverse effects. Furthermore, this economic burden does not only affect the patient but also extends to the family of the victim. Patients are also limited to job opportunities due to their condition and experience emotional torture because of public discrimination. Shockingly, employers claim that these people with the condition may cause huge medication insurance premiums and less working hours.
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I also urge that you can provide appropriate funds for supporting educational programs to people with epilepsy and to their friends and families. This will ensure that there is the development of skills to help manage the condition as partners of patient-centered care.
Sincerely,
Factsheet
In the United States, Epilepsy is among the top four common neurological disorders, a costly disorder that impacts society at large. For young people, epilepsy impacts on the self-dependency in the sense that, the participation of normal routine jobs is a major concern (Thurman et al., 2016). Consequently, epilepsy contributes to an additional burden of old-age-related diseases older adults thus hindering their safety. All these factors eventually result in economic burdens due to health care costs and indirect health care costs. Improving the lives of these people involves constant and coordinated efforts from government programs such as Medicaid.
Substantial disparities in health care delivery to epileptic adults are unquestionable. Allocation of funds to the Medicaid programs vary in states, also the background of people suffering from the condition determines the ease in accessing these Medicaid services. Employed people are likely to be insured by the Medicaid and so the active epileptic but less likely to the unemployed and those with no epileptic history. In Florida, a few years back, many people, especially those suffering from epilepsy were turned down in making purchases of health insurance. However, with the expansion of Medicaid, health insurance is easily purchased and relatively affordable, and available awareness programs have literally done away with discrimination (Born, 2017). However, this is not the case in some democrat states that face uncertainty in health care delivery. The residents and particularly those with epilepsy face barriers in insurance purchases and eventually no medical coverage (Eichenwald, 2018).
By allocating enough funds to ensure entire coverage of all people with epilepsy, in all states, will greatly improve the management of epilepsy. Negative outcomes of poor management of epilepsy would entirely be avoided due to the incensement of quality of life. People would get timely medical care in complex health systems. Furthermore, patients will potentially receive therapies without limits and thus epilepsy care is easily monitored.
References
Born, P. (2017). ACA Exchange Competitiveness in Florida. Risk Management and Insurance Review , 20 (2), 189-210.
Eichenwald, K. (2018). Held hostage by health insurance. Every career choice I made was determined by my epilepsy. If the affordable care act is killed, I’ll be back in the same trap, Opinion .
Thurman, D. J., Kobau, R., Luo, Y. H., Helmers, S. L., & Zack, M. M. (2016). Health-care access among adults with epilepsy: The U.S. National Health Interview Survey, 2010 and 2013. Epilepsy & behavior : E&B , 55 , 184–188. doi:10.1016/j.yebeh.2015.10.028
