This is an article which talks about the Sickle Cell Trait (SCT) and the significance of increased awareness. There is need for effective education not only for the patients, but for their families as well (Creary et al., 2017). Creary et al. (2017), begin the article by providing recent statistics according to the CDC. In America, hemoglobinopathy newborn screening determines which infants have SCT, and has been widely used since the '80s. Bender (2017), Mourao, Homes and Viana, (2015) and Asnani, et al. (2016) further show that an estimated 38% of caregivers initially have superior knowledge at baseline. However, aftr receiving proper education, these caregivers indicate an achievement of about 90% knowledge.
Towards the end of the article, the authors mention a few limitations to the study, such as African immigrant caregivers not being fluent in English and others not being approached due to not presenting for an in-person education (Diniz & Torres, 2018). Overall, caregivers' baseline know-how about Sickle Cell Trait is quite low, but eventually improves following in-person education (Mourao, Homes & Viana, (2015). This study is important to pediatric primary health care because it informs future possible interventions that are aimed at attaining superior and sustained SCT knowledge among caregivers of kids with SCT.
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This particular article correlates with clinical guidelines in that the quality of health care currently available is not good on respect to SCT and disease. Given that sickle cell illness is both chronic and hereditary, it tends to have a huge impact on the whole family. That is why it is important to understand its effects. Health education in basic care with promotion of health has been seldom assessed for families of sickle cell illness kids (Al-Azri, et al., 2016). Healthcare groups should, therefore, provide appropriate knowledge regarding SCT so as to enable decision making and promotion of self-care. This will also demystify the illness and allow for the development of citizenship (Diniz & Torres, 2018). A few aspects such as keeping the kids hydrated and avoiding extremely hot or cold settings should be observed by basic healthcare experts.
References
Al-Azri, M.H., et al. (2016). 'Knowledge and health beliefs regarding sickle cell disease among Omanis in a primary healthcare setting.' Sultan Qaboos Univ Med J , 16(4). e437 - e444.
Asnani, M.R., Quimby, K.R., Bennett, N.R., & Francis, D.K. (2016). 'Interventions for patients and caregivers to improve knowledge of sickle cell disease and recognition of its related complications.' Cochrane Database System Rev. , 10.
Bender, M.A. (2017). Sickle cell disease . Seattle: University of Washington.
Creary, S., Adan, I., Chisholm, D.J., & Varga, E. (2017). 'Sickle cell trait knowledge and health literacy in caregivers who receive in-person sickle cell trait education.' Mol Genet Genomic Med. , 5(6). Pp. 692 - 699.
Diniz, K.K.S., & Torres, H.C. (2018). 'Knowledge of professional healthcare providers about sickle cell disease: Impact of a distance education course.' Hematology, Transfusion and Cell Therapy , Volume 41, Issue 1. Pp. 62 - 68.
Mourao, L., Gomes, X., & Viana, M.B. (2015). 'Perception of primary care provided to sickle cell patients.' Revista Brasileira de Hematologia e Hemoterapia , Volume 37, Issue 4. Pp.247 - 251.